Itching and PSC go hand-in-hand. If you have PSC and haven't experienced itching yet, you probably will in the future. I personally consider it one of the worst symptoms because it tends to come and go for years and there is very little you can do to stop it.
As most PSC patients know, the disease involves inflammation of the liver's bile ducts. The ducts are unable to process and breakdown bile, so the bile gets into your bloodstream. The result? Itching (among other things).
Paul has tried all sorts of creams, but there s no relief in any thing he's tried. We were told by our friend Bill who use to have PSC, to try Aqueous menthol cream. That didn't give relief and with Paul's skin being broken we had to stop applying it.
Unfortunately, there is really nothing your doctor can do to make the itching disappear (and on a side note, Antihistmines are not going to help as the itching is not skin or allergy-related). The medication Urso is often prescribed to PSC patients and in some patients it helps manage the symptoms on the disease, but it is really hard to quantify. Paul is on Urso . I think it did help to some degree, but doesn't eliminate itching altogether. Another patient's experience might be completely different.
It's part of the dreadful PSC disease and Paul is at the end stages of this heartbraking illness.
The only thing that cure him of this, is a Transplant .
Sunday 4 September 2011
Saturday 3 September 2011
Paul urgently needs a Transplant
Sunday 3rd September 2011
Paul has had a dreadful few days, the itching is beyond ridiculous and it's heartbreaking to watch. This is end stage of liver failure. The Ascities and Endema have come along like parasite's. as if he hasn't got enough happening to him. I wish I could fix this horrendous disease, It's a heartbreaking position to be in, as theres nothing I can do, just to stay positive and have an optimistic attitude, very easy said than done.
I just want relief and a better way of life for Paul.I can see its getting unbearable for him.
Please god give him some relief.
Paul has had a dreadful few days, the itching is beyond ridiculous and it's heartbreaking to watch. This is end stage of liver failure. The Ascities and Endema have come along like parasite's. as if he hasn't got enough happening to him. I wish I could fix this horrendous disease, It's a heartbreaking position to be in, as theres nothing I can do, just to stay positive and have an optimistic attitude, very easy said than done.
I just want relief and a better way of life for Paul.I can see its getting unbearable for him.
Please god give him some relief.
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