Sunday 31 June
Paul has had a great day today, seemed his normal, happy go lucky self. Had Friends round and we haven't laughed so much in months, It was fantastic and a real boost for me, to see him like that. Surprising how things ,we take for granted mean so much at difficult and testing times.
Monday 1st August
Its a fact with PSC no two days are the same, you have to take each day as it comes, Paul's itching has started, its awful because theres no release, no creams or medicines work, he became very fatigued this afternoon and started with a slight temperature, fortunately it went down later on in the night. We can't afford for Paul to have any infections, his immune system as you would expect with the disease is non existent.
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