14th, 15th and 16th June 2011
Paul is recovering slowly but surely. he s going to continue to take antibiotics till we receive a new liver. Hes got to take frebusin protein drinks 3 times a day too. Paul was very downbeat today, Which is understandable, his emotions are all over the place, waiting for a transplant, is an emotional rollacoaster, going to bed and getting up, you always have the thought of is it today, that we'll will get that important call. your whole life is on standby.
It's a distressing time for everyone, especially for Paul, but were going to be optimistic, this is not going to beat us. PSC is an awful disease, it has a nasty habit of throwing things at you, without any notice.
We had a dietitian visit us today, shes told Paul he has to eat more calories and the importance of having snacks and to ensure he has a snack before bedtime, it was quiet odd for a dietitian to encourage you to have more calories, but with end stage of liver disease, the liver can't store fats, therefore you have to intake on food.
Its upwards and onwards, we will get through this together, and I know there will be days of ups and downs. but it won't beat us.
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